We’re more active than we think?

From WebMD

By Jennifer Warner

WebMD Medical News

Jan. 26, 2005 — People with
fibromyalgia  and other chronic pain conditions may be more
active than they think they are, according to a new study.

"When you ask people with fibromyalgia about their level of
function in terms of activity levels, they’ll report a lower function
than almost any other group," says researcher Dan Clauw, MD. "The
surprising thing that we found was that their average level of activity
was about the same as someone who didn’t have fibromyalgia."
. . .

In the study, researchers followed 38 people with fibromyalgia, chronic
fatigue syndrome, or both, and a comparison group of 27 healthy adults
without those conditions. Each participant wore an actigraph, a small
watch-sized device that measures movement in various directions rather
than just one direction like a pedometer, to measure physical activity
levels.
. . .

"
. . . the study showed that pain and fatigue preceded lower exercise
levels rather than followed increased physical activity. Researchers
say this finding may help doctors encourage their patients to remain
active without increasing painful symptoms.

"We’ve probably been thinking about fibromyalgia incorrectly," Clauw
says. "This group was impaired, but they weren’t impaired in the way
they thought they would be."

Worth reading all of it (it’s short) — and
interesting implications. I fear the major one is that people aren’t
getting nearly the exercise they should. I also wonder about the
activity history of the subjects. I used to swim 20 laps a day;
compared to that, I barely move now — and that influences, no doubt,
how I measure my current activity level.

3 responses to “We’re more active than we think?”

  1. I totally agree with you—those “controls” must have been couch potatoes. And they must be counting the tossing and turning at night as activity! Sounds like a pretty lame study overall, which seems to be the norm in the CFS/FMS world (me cynical? nah!). Mixing CFS and FMS patients is the first clue that they don’t know what they’re doing.
    Physical activity decreases after pain and fatigue… duh! I don’t know where they got the idea that pain isn’t associated with increased activity; I prove them wrong on a regular basis. They probably didn’t take delayed reaction into consideration.
    It’s like they’re looking for some explanation other than the one their patients are giving them. If they don’t think their patients are impaired they should try putting them in an aerobics class and see what happens–it wouldn’t be pretty.
    Too bad these doctors aren’t looking for answers as to why we feel the way we do, instead of trying to prove we aren’t feeling what we’re feeling. Grrrrr.
    </rant>

  2. I was an athlete active 7 days a week. I’m still an athlete at heart. My body doesn’t cooperate. I still do what I can, try to stretch, walk when I can. The pain is just as active & real when I’m still though. Sometimes I think, what the heck, I hurt anyway, why not just rearrange the living room furniture? So, I do. I pay for it, but it seems I’m paying for it anyway. 🙂

  3. People with fibromyalgia  and other chronic pain conditions may be more active than they think they are? Perhaps I am horizontal 23 hours a day instead of the 23.5 hours I think. All that walking in and out of the kitchen, bathroom, etc., probably makes me more mobile for half an hour more than I think I actually am. 5 years ago I used to be vertical, either sitting up in an office, or walking, 16 hours a day. Now I cannot sit up for longer than 5 minutes. If I push myself through the pain, my brain gets so inflammed I simply cannot function until I have rested.

    I have seen some rubbish reports, but this is one of them. You have to wonder if such a study is funded by insurance/pension companies or by bodies that have a vested interest in disproving how we severely affected FMS/ME sufferers feel.

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