Fmawarenessdaylogo

Non-blogging friends Joe & Charlene sent a note reminding me that today is the day to help remind others — who are not otherwise daily reminded — of what Fibromyalgia is.

If only we knew.

But we do know how it effects the lives of some who have it.

A few years ago this was known as International ME/CFS/Fibromyalgia Awareness Day, but an internet search today doesn’t find that. Many of us have been diagnosed with both (and several other) conditions; my reading hasn’t clarified for me what the difference is, except that folks with M.E./CFIDS are really tired, and folks with Fibromyalgia really hurt — but most with either suffer both.

 

I look at that butterfly on the logo up there, and I know that we (patients) are expected to be hopeful and cheerful and spiritual and all that, but I gotta tell ya — this illness does not feel like emerging, bright and beginning, from some cocooned metamorphosis.

Nope.

Just doesn’t.

[Crossposted from Watermark]

 

4 responses to “Fibromyalgia Awareness Day”

  1. Sylvia Avatar

    Happy (?) ME/FM Day! I’ve seen that butterfly on ME websites too and it’s a bit much. What’s wrong with being a nice, fuzzy, leaf-eating caterpillar? It takes guts to crawl through life! 🙂

  2. laura Avatar

    I tend think of us as butterflies with our wings clipped a little bit.

    But they do grow back…and we will flutter about once again.

  3. Robin Reagler Avatar

    I was ignorant of this illness. Thank you for educating me. I hope ease comes your way one day soon.

  4. Lisa Copen Avatar

    I am the founder for National Invisible Chronic Illness Awareness Week, held annually in Sept. This year it is Sept 10-16, 2007. Based on the content of your blog I thought you would be interested in knowing about the week, as well as our awareness video at http://www.invisibleillness.com .

    You are welcome to share any of the information from the web site with your readers, including the video. This year’s theme is “Living with invisible illness is a roller coaster. Help a friend hold on!” There will be 3-4 chat seminars each day and there are items such as t-shirts, car decals, pins, etc. to help spread the word.

    Thank you so much for your efforts in blogging about chronic conditions. Nearly 1 in 2 people in the USA have a chronic condition and 96% of it is invisible. We hope to bring people together to encourage one another, as well as increase the awareness that one may “look great” but not feel so wonderful.

    Lastly, I’m giving away free copies of my book “Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend” to bloggers or web site owners who would like to review it on their web site or give it away to a reader as a prize. Just email me back your postal address at lisa@invisibleillness.com if you’re interested. You can read more at http://www.beyondcasseroles.com .

    Thanks so much for your blog, helping others understand illness and pain.

    Lisa Copen
    http://www.invisibleillness.com

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